It's been a busy couple of months within the group: holding our
AGM and having the accounts audited, welcoming some new committee
members, saying goodbye to retiring members and taking over their
roles, seeing the opening of the new clinics and holding a stall
at a student fair, so I've been fairly busy!!! I'm still steadily
walking - although not much further, and I've been to Harley Street
again to try and keep on top of that excess nervous energy and turn
it into Healing Energy.
At our September meeting we held the AGM. Barbara gave the Chairman's
report and Diane reported on the year's finances. (Both reports
available on request.) We also had 3 members retiring from the committee
- Barbara, Angie and Jan - all of whom had been on the committee
at least 10 years - so they will be greatly missed. The committee
had been out for a meal to thank them for all their hard work and
they were also presented with gifts at the meeting.
Two new members were voted onto the committee - Linda Pearl and
Linda Foley. Both have boys with ME and have lots of ideas for taking
the group forward - so we welcome them.
After the business was over, James gave the group a talk about aromatherapy
and then answered a lot of questions and let members smell the different
In our October meeting we took part in the national fundraising
'Have a Cuppa For ME'. Members came for a social afternoon, but
donated money towards ME research. We raised over £20 and
the committee have decided to donate it to Professor Puri's ongoing
research into blood tests, gene expression, brain function and how
the VegEPA oils help ME sufferers.
Also, the Paediatric Nurse from the new children's clinic came along
and chatted with members. We hope she will come back in the New
Year to talk to the group about the progress of the local clinics.
Wednesday 16th November 7pm - 9pm
Craft evening. Making cards for Christmas.
Remember to sign in at the door.
There is the usual parking in Green's Road and Primrose Croft.
We will be making Christmas cards at the November meeting. If you
have any photographs or
pictures you would like to make into a card, please bring them (but
there will be plenty of other
things to use if you don't). Please also bring a pair of scissors.
Even if you don't want to join in with the crafts, please come along
for a chat and support.
Remember to make a note in your diary or on your calendar of the
Future Meetings dates 2006
There is NO meeting in December
Monday 16th January 1.30pm-3.30pm
Bring and Buy Sale - bring along unwanted
Christmas gifts or come and buy yourself a present!
Informal Social Afternoon - drop in for a chat!
Wednesday 15th February 7pm-9pm
(to be confirmed)
All meetings to be held at Hilltops Carers'
Centre, Primrose Street, Cambridge.
We've been busy making more Recycled Birthday cards, which
are sold in aid of the ME Group, so come and browse and buy!
We also have a small stock of AFME Wristbands and BRAME blue
ribbons for you to buy.
A lot of our members have Multiple Chemical Sensitivities so please
can members who attend meetings try to avoid wearing hair spray,
body spray, perfume or any strong smelling scent.
For more information and support about MCS visit www.chemicalfree.co.uk
As the group committee is slowly evolving we are making changes
and trying to cater to your needs. To this end, 2 of our committee
members are, at present, creating a questionnaire which will be
sent out to everyone in the near future to try and find out a bit
more about you all. From name, age and sex to what would interest
you at meetings and what your energy levels and symptoms are like.
We then hope to be able to provide meetings that interest certain
groups e.g. children's activities, or a meeting for male sufferers.
Also the newsletter can contain more relevant items.
All information will be confidential.
On this theme, we are always happy to hear from you and I would
really love some articles for the newsletters. Please e-mail them
to Diane or send to
my address (see 'subscriptions'). Don't worry if your English skills
aren't as good as they once were or you can't get out what you want
to say - send me what you have and I'll edit it as necessary. Thank
Update on the new clinics/services for ME
Since September 1st, the children's clinic and the adult team in
Peterborough (which I believe also covers Huntingdon) have been
up and running.
The Adult team is still being developed for the Cambridge area and
a doctor willing to specialise in ME is being sought to run the
Peterborough Today wrote an article about the new clinic: visit
National Support Groups
There are a number of National charities in the UK that support
ME - in the next few newsletters I will tell you a bit about each
Action For M.E.
Action for M.E. is the UK's leading charity dedicated to improving
the lives of people with M.E. They've been at the forefront of the
campaign for more research, better treatments and services since
1987 and they provide information and support to people affected
The Cambridge ME Support Group is affiliated to Action for ME, so
as a group we can buy their leaflets for a reduced price, receive
their group newsletter and access information specifically for groups.
For £15 a year, you can become an individual member. You will
have access to online counselling, the library-by-post service,
residential courses, welfare rights help, telephone support, information
for young people (A4ME), a large number of booklets and information
leaflets at a discounted price, and four times a year you will also
receive the 'InterAction' magazine which is packed with contacts,
support and help on managing ME, positive ways of dealing with situations,
a system to put readers in contact with other sufferers, updates
on research and lots of other useful information.
To find out more or request a free information pack call 0845 1232380
or go online and visit www.afme.org.uk
Young People can visit www.a4me.org.uk
A lot of our members have looked into using light boxes to help
during the winter months
. This is from an article in the Mail
on Sunday magazine
"If you suffer from winter blues, medically known as seasonal
affective disorder or SAD, a light box and/or dawn simulator alarm
clock can really brighten your life. For lots of information about
SAD and a range of products, contact Outside In.
Tel: 01954 780500 (www.outsidein.co.uk)
The Dawn Simulators (called Body Clocks), which wake you naturally
with a gradual sunrise, can be found online at www.lumie.com
(Tel: 0845 6589292)
Eye Tests At Home (from IMEGA-e)
The Outside Clinic is a national domiciliary optician service that
offers free home visits and eye tests to people unable to attend
a street optician. Its mobile opticians will provide a complete
home test on the NHS and offers a full dispensing service.
For more information visit www.outsideclinic.com
or telephone freephone 0500 295245.
When I receive your subsciptions, I often get comments, information
or your experiences sent to me as well. There are so many different
approaches to try and not everything works for everyone, but this
member believes that Christian Healing helped him. Here's Adrian's
CHRISTIAN HEALING by Adrian Rose
My first experience of Christian Healing came in October 1997.
I had been completely bed-bound with M.E. for 18 months, and was
having a terrible time. I had been suffering with dreadful brain
symptoms and hypersensitive nerves and was really struggling.
My parents contacted a local lady called LiesI Alexander who was
well known in our area as having a very powerful Christian Healing
and Deliverance Ministry called Free to Live Ministries.
Thankfully, Liesl agreed to come and pray with me. As she laid her
hands on me and prayed I felt a sudden surge of energy and found,
from that point onwards, that I could sit-up all day (previously
I had only been able to sit-up for 15 minutes at a time.) I had
hoped that I would go on to quickly recover completely, but unfortunately
the next few years were still very tough, (though I never returned
to being bed-bound again). It was all a bit confusing.
My second experience happened in early March 2003 when I went to
a Church Healing Service held by the same lady who had visited me
in Oct 1997. When I was prayed for at the end of the service, I
noticed a sensation of deep warmth appear in my back (where I had
previously experienced a lot of pain). These sensations of warmth
continued to appear in my back on a daily basis throughout the spring
and summer of 2003 and I noticed gradual slight improvements in
My most dramatic experiences of Christian Healing though, took
place during the latter part of 2003 and are continuing to this
date, (9th August 2005).
My ability to read suddenly, dramatically improved in the autumn
of 2003 which led me to be able to read an extremely good book on
the subject of Christian Healing. The book was called "Healing
the Sick" by T.L Osborn.
I am convinced that the teaching on Christian Healing which is outlined
in this book has been responsible for the improvements which I have
experienced and am continuing to experience. I seemed to find so
many answers in its pages to so many questions I had about life,
sickness, suffering and, of course, healing.
As soon as I began acting on the principles outlined in Healing
the Sick, I started seeing miracles, constantly, every day and am
still, to this day, in a constant state of amazement at the changes
which have taken place in my life and health.
The book claims that many thousands of people have received healing
from God simply by acting on the information contained in its pages.
I will freely admit that I was initially extremely skeptical, until
I witnessed it for myself.
I, quite suddenly and dramatically, became able to be up on my
feet, walking around, for hours at a time (previously I had only
been able to walk for 2-3 minutes at a time). I started to go out
and about for rides in the car (not driving initially) everyday,
(before this I had only been out in the car 9 times in 7 years).
I also started to enjoy seeing friends and relatives that I had
not been well enough to see for years.
As my strength continued to grow, I began to find bizarre pleasure
in doing the housework, (hoovering, dusting, polishing, washing-up
etc), all of these things had previously been unthinkable, as I
had been almost 100% disabled. I could even cope well with busy
supermarkets again. "Praise God!"
At the time of writing this letter (Summer 2005), my health is
still only improving (no relapse at all). I had hoped that my healing
would be quick but since my big breakthrough it has actually continued
in a more gradual and sustained way (God knows best!)
Over the last eighteen months I have become increasingly more active
within my local Churches. On top of this I have managed to record
a CD album of songs which I have recently written (I used to play
and sing in a band before I became ill). I recently started driving
again for the first time in nine years and am also currently trying
to get a publishing deal for a book which I have just finished writing
about my experiences called Love Never Fails. It all feels incredibly
To find out more - email Adrian
Or Visit his website www.Adrian-Rose.com
Earlier in the year the group was asked if we wanted to have a
stall at the Anglia Poly University (ARU) Community Fair held at
the end of September.
The theme was an old fashioned village fair, so we decided to have
a buzzer game where the students pay to thread the loop around the
bendy wire without touching the wire and causing it to buzz. The
fastest would then win a prize. We also had a lucky dip, our information
leaflets and blue ribbons and wristbands for sale.
The day was fun, but unfortunately a lot of the students just wanted
to partake in the free activities, so we didn't make much money.
They did pick up leaflets though, so at least it helped spread ME
Thank you to the members who came along to support and help us.
Car Parking in Cambridge
When I first received Disability Living Allowance I was told I
could apply for a Blue Badge. To begin with I was really unsure
about it, as it was a nod to being disabled and I didn't want that
- just my pride and stubbornness that I had to swallow and that
we all have to deal with! But now I have it, I'm so glad. It's been
a godsend allowing me to do more and to go to places I wouldn't
consider as I can now park much closer and therefore don't use all
my energy walking there!!
But I've learnt to be cautious over the last few months, as I've
come unstuck a few times! As a rule you can park anywhere sensible
(when you first get the badge there is a leaflet with where you
can and can't park) and it's usually free for a set period (that
period of time is usually longer than I have energy for, so it works
Here's where I got caught out:
In the Grafton Centre car park, by the cinema: we were there just
over 3 hours (first 3 hours are free) so we knew we'd incur a charge,
but rather than charging us for the last hour - which was after
6pm therefore around 50p, we were charged £1.40 which is the
standard 1hour charge for during the day!
At the new Leisure Park on Cherry Hinton Road - again parking for
the cinema - we had parked in the disabled spaces near the Travelodge
several times before, for free, but now the building work is virtually
finished there is a sign which states disabled people must Pay and
Display. We didn't see this as its displayed several metres before
the parking spaces, so we got a parking ticket!!!
The irony is, when we go to London, we bought a £10 Congestion
Charge exempting us from £5-a-time charges for a year and
we park for 3 hours in Harley Street for free!!!